Sorry I haven't written sooner because I know you were all rooting for zero leukemia cells on day 14......unfortunately, that didn't happen. 20% of the few white cells I have left are still Ms. XXXX. I don't like her! I was going to allow myself on boohoo day and it kinda stretched into two, but like a grandmother friend of mine said to get grandchildren once, "You get what you get and you don't throw a fit." Anyway, I'm ready for round two and I think I got her on the ropes and this will be the knock out punch!
What's happening now: I start all over at the beginning of chemotherapy again. It won't be as strong of dose of chemo because we don't want to cure the leukemia only to have heart problems later. When they told me Tuesday I wasn't zero, I told them let's not wait another minute, let's start again right now. I have one more dose left of double chemo and four more days of single chemo, then another seven day waiting period, then another bone marrow biopsy. So, my dear friends, once again I'm asking for your prayer and well wishes. The hope remains the same; zero leukemia cells on day fourteen.
On a happier note, I have lost five pounds on my high calorie, high protein diet! it seems I'm eating all the time (I was actually afraid I would gain weight) but the scale says differently. YEAH!!!
I still love the buzz! However, my hair continues to fall out and I don't know if it's because I have been rubbing the top of my head too much, but I'm kinda getting that horseshoe bald kind of look. NOT the look I was going for! One nice thing though, Ron says I'm the best looking horseshoe bald gal he's ever seen. Now you know why I love this man.
My skin hasn't looked this clear and nice for a long, long time. I'm on intravenous and oral antibiotics and I'm pretty sure that's what is doing the trick. However, I cannot recommend leukemia therapy for skin improvement.
I'm sorry to say, because the chemo is working, it's making my immune system very, very weak. They want to limit my visitors to immediate family only. So, to keep me healthy, I have to miss my cherished visits with my dear friends. I hope you'll understand.
Words cannot express the gratitude Ron and I feel for all the love and support we have received from our family and friends. You are and always will be our very best blessing.
With Love and Gratitude,
God Bless You,
Connie
A boohoo day every once in a while seems appropriate for what you are going through. Blessings on you and your family.
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