I know it has been a very long time since I have written anything, but my biggest fear is I will bore you with my medical trials and tribulations. I think about all of you constantly and, believe it or not, I would LOVE to be back at work complaining about Mondays, and parking, and vendor shortages……
NOVEMBER 4: Back to the hospital for my first consolidation round of chemo. I REALLY hated to go because I was just beginning to feel like myself again. The chemo went smoothly and after five days and one day for the magic cells they let me go home on day seven! I had no immune system so we were VERY careful of any germs, but I still ended back at the hospital. I started running fevers again after only two days home. SOOOOOO disappointing. They did cultures on every secretion that a body produces, and still couldn’t find the reason for the fevers. Eventually the fevers lessened, I started producing my own white cells again so they sent me home with a cocktail of antiviral, antifungal, and antibacterial medicines. Ron has become my UN…..Unregistered Nurse. He thinks he should get a business card that says:
RON CHOSE, UN
You get what you pay for.
Actually, I know I couldn’t get through this without his wonderful care……so I guess I’ll keep him. J
DECEMBER 14: I meet with my bone marrow transplant team. They started searching the world registry after we found none of my siblings were a match. I’m told it could take weeks to many months, but they want me to be ready as soon as one is found. I am excited about this meeting because I have tons of questions.
DECEMBER 26: After some negotiations, we had my next chemo moved from the week before Christmas to the day after! Soooo, between now and the 26th I get to enjoy the Holidays! I am still weak, and bald, and sometimes chemo brain addled, but I can have company or meet up with people as long as no one is obviously ill. AND I WOULD LOVE TO SEE YOU! I feel like I have been in isolation way too long. I’ll try not to be boring.
LASTLY: To say Ron and I are grateful to my co-workers and friends is an understatement. To all of you who cooked hot dogs and all of you who ate hot dogs……THANK YOU. Your generosity and kindness has touched us more than you’ll know and we will be forever grateful. I believe there are Angels on this earth and I know they work at Boeing! You are my greatest blessing. Thank you again.
With Love and Gratitude,
Ron & Connie Chose
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